Living with lupus

Taking control of your health

Living with Systemic Lupus Erythematosus (SLE) can sometimes feel overwhelming, especially with its unpredictable symptoms and flare-ups. However, learning how to manage your condition effectively can make a significant difference in your daily life. When you feel confident in self-management, you can improve your physical health, mental well-being, and overall quality of life.

Developing strong self-management skills helps you:

Better symptom control - Understanding your triggers and following your treatment plan can help reduce flare-ups and complications.
Maintain independence - Knowing how to manage lupus means you can continue doing the things you love with fewer disruptions.
Reduce stress and anxiety - Feeling in control of your condition can ease worry and uncertainty.
Improved doctor-patient communication - when you are informed, you can make better decisions and have more meaningful discussions with your healthcare team.
Ensure better long-term health - Being proactive can help you stay as healthy as possible for yours to come.

The good news? You don’t have to figure it all out alone – there are many ways to build confidence in self-management and get the support you need.

How to build confidence in managing lupus?

Healthy Living Tips

Take small steps toward self-care - every improvement matters
Listen to your body—balance rest and activity to avoid burnout.
Try relaxation techniques like deep breathing, mindfulness, or gentle stretching.
Set realistic goals—you don’t have to do everything at once.

Connect with Others Who Understand

Join a lupus support group (either online or in-person) to share experiences and coping tips.
Talk to family and friends about how they can support you.
Seek professional support - a counsellor or psychologist can help if you’re struggling emotionally.

Get Educated

Learn about your type of lupus- knowing how your body responds can help you manage symptoms better
Ask your doctor or nurse for reliable resources, including websites, booklets, or support groups.

Use Available Resources

Check out lupus organisations for helpful guides, webinars, and workshops.
If you need workplace, school, or financial support, reach out to disability services or advocacy groups.

Work with Your Healthcare Team

Make the most of your appointments - ask questions and raise any concerns.
If something isn’t working, speak up—your doctor may be able to alternative treatments or strategies.
Keep a symptom diary – this can help track what makes your lupus better or worse.
Stay organised – use a planner or app to track medications and appointments.

You’re Not Alone – Help is Always Available

Feeling confident in managing lupus doesn’t mean you have to do it all alone. It simply means knowing where to turn for support, guidance and reliable information.

Over time, with the right support and self-care strategies, you’ll develop the skills and knowledge to take control of your health and live well with lupus.